2025 Senate Resolution 48

Whereas, Ehlers-Danlos Syndrome, or EDS, is an inherited condition that affects the connective tissues of the body; and

Whereas, Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs, and bones; and

Whereas, There are 13 types of EDS caused by genetic defects in collagen, one of the major structural components of the body; and

Whereas, Symptoms of EDS may include joint hypermobility, loose, unstable joints that dislocate easily, joint pain, skin that bruises easily, digestive problems, dizziness and increased heart rate when standing up, and problems with internal organs, among others; and

Whereas, Eighty percent of people with EDS also have postural orthostatic tachycardia syndrome (POTS); and

Whereas, POTS occurs when an individual’s heart rate increases very quickly after getting up from sitting or lying down causing symptoms such as dizziness or light-headedness, fainting or almost fainting, noticeable heartbeats (heart palpitations), chest pain, shortness of breath, and shaking or sweating; and

Whereas, Those suffering from POTS may also have additional medical problems including digestion problems such as feeling or being sick, diarrhea, constipation, bloating and stomach pain, headaches and problems with sight such as blurred vision or tunnel vision, hands and feet looking purple, weakness and extreme tiredness and fatigue, and problems with thinking, memory, and concentration; and

Whereas, It is estimated that the prevalence of all types of EDS combined affect at least 1 in 5,000 people worldwide with recent research indicating that EDS is likely under diagnosed; and

Whereas, EDS may significantly decrease both quantity and quality of life for those affected; and

Whereas, Currently, there is no treatment for EDS and no known cure. Further medical research and awareness can bring hope for those with EDS; and

Whereas, Early and accurate diagnosis can help create lifesaving medical plans and improve overall quality of life; and

Whereas, A network of EDS support groups can help connect those managing life with the disease as well as better inform the health care community and the public; now, therefore, be it

Resolved by the Senate, That the members of this legislative body designate May 2025 as Ehlers-Danlos Syndrome (EDS) Awareness Month. We honor those bravely suffering from EDS and encourage scientific research and funding to find a cure.